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@arizona10238417.bsky.socialOct 5, 2026, 8:14 AM

Mir gehen die Ideen aus, wer medizinische Grundversorgung bieten könnte

Man will nicht

Mir gehen die Worte aus, es einem jungen Menschen zu erklären, der täglich um sein bisschen Restleben kämpft, NEIN, wieder kein Arzt

#MECFS #Chefsache @oezdemir.de #GrößterMedizinskandal

@alemmatthees.bsky.socialOct 5, 2026, 8:14 AM

The approach to #LongCOVID has been ignore it until it goes away, preferring fantasy over reality. It has not gone away. This approach was applied to #MECFS for decades and it did not make anything go away except QoL, welfare/insurance costs, critical thinking, foresight to prevent trillions $ lost.

@michaelnobbs.bsky.socialOct 5, 2026, 7:54 AM

I had quite an audience as I filmed my #MorningView 😀

It's lovely to see the sheep back in numbers 🐑 🐑 🐑 🐑 🐑 🐑

Wishing you a gentle start to the week.

#MECFS #pwME #Wales #CreativeHabit

@jeanmue.bsky.socialOct 5, 2026, 7:13 AM

#MECFS
#LongCovid
#Lesung
#online für chronisch Kranke mit Anmeldungen
Danke
#BibliothekPankow ☺️😷😷😷

www.berlin.de/land/kalende...

@s4me.infoOct 5, 2026, 6:19 AM

Pharmacological Treatment Approaches in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) — Habermann-Horstmeier

#MECFS

@abrokenbattery.bsky.socialOct 5, 2026, 6:13 AM

“I haven’t done things like showering for over a month now.”

39 year old Caroline describes the isolation of living with severe #MECFS and #POTS, spending almost 24 hours a day in bed and needing help with basic everyday activities.

@achronicvoice.comOct 5, 2026, 4:30 AM

" #MECFS has taken enough pieces of my old life; [my #optimistic self] was one piece I refused to give up. In fact, I think that I needed to continue to be that person now more than ever.": buff.ly/1a3Rrxu

by lisaalioto
#SelfIdentity #MondayBlogs #ChronicIllness #disability #pwME #ChronicFatigue

How to Use the Tetris Effect to Invite Positivity Back into Your Life, Despite Chronic Illness
@bigpolarbear.bsky.socialOct 5, 2026, 2:26 AM

今日は過日の青空をお届けします😃

筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。

#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge

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@s4me.infoOct 5, 2026, 2:06 AM

The importance of work: A qualitative study of primary carers of severe ME patients’ experiences of balancing work with comprehensive caregiving responsibilities — Størdal and Iversen

#MECFS

@chronicloaf.bsky.socialOct 5, 2026, 1:31 AM

Next in the #ChronicLoaf stream we're watchin the movie #TheyThem

Then we're watchin #Frewaka

Hop in and watch with us @ mzelo.com/app/rooms/ch...

#Criptober #FaerieRealm #Halloween #spookyseason #ForTinu #FilmDis #SexTalkSunday #NEISvoid #mecfs

They/Them movie posterFrewaka movie poster
@mari-19.bsky.socialOct 5, 2026, 1:19 AM

en.wikipedia.org/wiki/Myalgic...
Due to #MECFS I got up at 2 am German time yet, showered, washed & blow-dried my hair.
BP 107/75, body temperature 35,5°C/95,9°F, outside it cooled down to 17,8°C/64°F in SW Germany.
Happy very early #ManicMonday #Mäntig #Montag #Lundi meowing.
💖💖💖

Photo, no description
@s4me.infoOct 4, 2026, 11:11 PM

🧵 of highlighted #MECFS and #LongCovid research papers discussed in the last week on the Science for ME forum.

28 Sep - 4 Oct 2026

@tomkindlon.bsky.socialOct 4, 2026, 10:16 PM

New from France

Interesting long Covid research where all participants satisfy ME/CFS criteria

Evidence for transcriptomic changes impacting muscle contraction in patients with post-acute COVID-19 syndrome

www.sciencedirect.com/science/arti...

#LongCovid #MEcfs #PwME #CFS #postcovid #postcovid19

Post-acute COVID-19 syndrome (PACS) overlaps with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) but, due to frequent muscle pain and exertional intolerance, neuromuscular disorders are often suspected. We report the results of a comprehensive neuromuscular evaluation in 27 PACS patients (22F/5M; median age 41 ys). All patients developed chronic fatigue (>6 months), post-exertional malaise, and cognitive impairment, with muscle pain in 88% but no neuromuscular deficits at clinical examination. 18/27 patients were unable to work. All patients fulfilled established ME/CFS diagnostic criteria (CDC 1994, ICC 2011, Inst Medicine 2015, NICE 2021). Electrophysiological studies and CK levels were normal. Brain 18FDG-PET/MRI (14/27) showed posterior hypometabolism in 8/14. Muscle biopsy (7/27) showed moderate dysimmune changes in 2/7. Exploratory transcriptomic analyses performed in muscle biopsies from PACS patients and pre-COVID controls unveiled in PACS differentially expressed genes in the cytokine and autophagy pathways. Interestingly, other genes were also differentially expressed in pathways affecting actin, the cytoskeleton, and contraction. Indeed, we found upregulated genes involved in the troponin-tropomyosin complex, a key regulator of muscle contraction through calcium binding. We also found downregulated genes involved in the formation and stabilization of actin bundles at sarcomere Z discs and in mechanical signaling. These findings indicate that PACS patients with prominent muscular symptoms do not exhibit overt neuromuscular involvement on standard investigations but may show subtle myopathic or dysimmune changes and central metabolic alterations. At the transcriptomic level, the data show an impact on key pathways involved in contraction. The overlap with ME/CFS highlights the importance of careful differential diagnosis and suggests a complex pathophysiology beyond a basic muscle disease.
@emergeaustralia.bsky.socialOct 4, 2026, 9:00 PM

Shop #BettytheBattery plushies, T-shirts, socks and more, featuring artwork by Amanda Francey & Shiloh Moore.

Every purchase supports #EmergeAustralia’s work for people living with #mecfs & #longcovid 🎁 zurl.co/3YR9B

#ChristmasGifts

Emerge Australia Christmas merchandise graphic on a navy background with green starbursts. Text reads: “Gifts that give more. Christmas gifting by Emerge Australia. Shop the range.” Products shown include a CureME drink bottle, black tote bag, “Do Not Disturb – Recharge in Progress” eye mask and patterned socks.
@s4me.infoOct 4, 2026, 8:33 PM

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 28 - Oct 4:

s4me.info/threads/news...

#MEcfs #PwME #LongCovid #PwLC

@chronicloaf.bsky.socialOct 4, 2026, 8:20 PM

#Maleficent & #MaleficentMistressofEvil are playing next in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...
I'm trying to fit in as much as I can on the last (official) day of our #FaerieRealm theme

#neisvoid #mecfs #DisCo #ForTinu #Halloween #Art #spookyseason

@thorsten-runge.bsky.socialOct 4, 2026, 7:42 PM

21:42 Uhr - Frühstück.

#NON24
#MECFS

@dgspsoa.eurosky.socialOct 4, 2026, 7:10 PM

Für mich ist die Suche nach Einwahldaten und Login bei der Bank 'Hacking'.

#Brainfog
#PAIS
#MEcfs
#PostCOVID