Neurocognitive Indices of Long COVID: Dysregulated Engagement of Inhibitory Control and Oscillatory Slowing — White et al
@s4me.info
@s4me.infoNeurocognitive Indices of Long COVID: Dysregulated Engagement of Inhibitory Control and Oscillatory Slowing — White et al
@tomkindlon.bsky.social🧵
Ultimately, fatigue in ME/CFS shrinks lives so severely it often takes a devastating toll on mental health. This impact is unsurprising given the immense loss of careers, relationships, hobbies, & independence.
#mecfs #pwME #cfs #fatigue #ChronicFatigueSyndrome
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@solveme.bsky.social📣Big news from Solve’s research team re: an upcoming funding opportunity for researchers studying #MECFS, #LongCovid, and associated conditions! Stay tuned for more info on October 6 & click the link to learn more about our Ramsay Research Grant Program.
@nlizaki.bsky.socialThis must stop. I'm tired of losing my friends in the ME community to death. I've been tirelessly advocating since 2011, and we've only received crumbs in terms of funding! We don't have decades. We are alive NOW. (2/4)
@tomkindlon.bsky.socialI was one of a number of patient scientists and advocates who was interviewed for this sympathetic, open access paper
"Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis"
@besminlif.bsky.social#MECFS fundraiser raising money for Action for M.E. @actionforme.bsky.social
@tomkindlon.bsky.social🧵
Fatigue is an unrelenting,deeply isolating symptom in ME/CFS.It cuts individuals off from family time, social activities, & hobbies, fundamentally fracturing their identity & how they view themselves.It leaves people grieving who they used to be
@tomkindlon.bsky.socialFrom @meresearchuk.bsky.social
Self-management support for people with ME/CFS should be personalised, delivered in manageable stages, and embedded in a consistent care pathway with ongoing review and follow up finds study from Norway.
Read more: tinyurl.com/ycyrv5ms
![`Self-management support' often fails to reflect the physical and cognitive nature of the ME/CFS
r Researchers in Norway interviewed 12 people with -1 ME/CFS and 4 next of kin about their experiences of self management support for ME/CFS.
r Results indicated that participants felt that current support offered by the health care system often failed Lo reflect the physical and cognitive effects of ME/CF_S
rParticipant experiences were grouped into three key themes, which reflected that the following should be included in care:
Tailored, accesible Consistent care Peer, practical and L support and validation family support.
] r Note: Participants with ME/CFS in this study were all women, limiting the transferability of the results.
RESEARCH UK
INFORM. INFLUENCE. INVEST.
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Gronning, K., Lysfjord, L.E. & Rostad, A.K.H. BMC Health Sery Res. 2026;26 (1182): 14962-9](https://cdn.bsky.app/img/feed_fullsize/plain/did:plc:43rudsv62fuwsmnk7oppgtdy/bafkreidehhfcwcjkkl7swucqfcz5eekmqs25surwnxyptkztlwjbne4cv4@jpeg)
@pflegeherz.bsky.social1/1 Die BARMER unterstützt aktuell eine Studie des aqua Instituts zusammen mit dem Uniklinikum Heidelberg zu #LongCovid und #MECFS. Zugrunde liegen Mitgliederdaten, die ausgewertet wurden und zumindest den Verdacht nahe legen:
@dailyalpine.comBurgenland sets 10 conditions for data centres #Burgenland #datacentres #MECFS
@kimvr.bsky.socialEvery day may not be a good day, but there is always something good in every day. #recovered #anxiety #eatingdisorder #NeverGiveUp #AlwaysKeepFighting #Fibromyalgia #MECFS #Erythromelalgia
@dgspsoa.eurosky.social