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@s4me.infoOct 6, 2026, 3:26 AM

Remnant virus proteins sustain vascular inflammation post coronavirus infection in mice and humans. — Gibler et al

#MECFS

@mari-19.bsky.socialOct 6, 2026, 2:14 AM

en.wikipedia.org/wiki/Myalgic...
Due to the #MECFS I got up at 2.40 am, after I´d been lying awake for a good hour.
BP 122/78, body temperature 35,6°C/96,1°F, outside it cooled down to 16,5°C/61,7°F in the district of Konstanz/SW Germany by 4.15 am.
Happy early #Mewsday.
💖💖💖

Photo, no description
@tomkindlon.bsky.socialOct 6, 2026, 1:55 AM

Pharmacological Treatment Approaches in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

www.scifiniti.com/3105-3874/2/...

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Pharmacological Treatment Approaches in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) — Habermann-Horstmeier "To date, no causal pharmacological therapy exists for this disease […]. However, early implementation of symptom-oriented management strategies and pacing may improve symptom control, functional status, and quality of life, although no evidence currently demonstrates reversal of the underlying disease process." Article | Thread
@simsamzi.eurosky.socialOct 6, 2026, 1:49 AM

#MECFS #Fatigue "weighed down by concrete" is a pretty good description how it physically feels.

Pacing nowadays feels like having a broken battery that only charges up to 10%, you know it's not enough to last all day but it HAS to last all day- so you use every little trick to make it happen.

And

@tomkindlon.bsky.socialOct 6, 2026, 1:44 AM

Conference in Iceland - Bridge between continents

The conference will be held in English and will be live-streamed (for free).

mefelag.is/bridge-betwe...

mefelag.is/bridge-betwe...

Screenshot from latest Science for ME weekly update

#LongCovid #MEcfs #POTS

Conference in Iceland - Bridge between continents Thursday, 29th October The ME Society of Iceland in collaboration with other groups is holding a conference to bring together "leading Icelandic and international experts in ME, Long COVID, Environmental illness and POTS" to share knowledge from research and clinical practice. The conference will be held in English and will be live-streamed. Registration closes Oct 20th. Announcement l Program | Thread
@tomkindlon.bsky.socialOct 6, 2026, 12:27 AM

From Norway

The importance of work: A qualitative study of primary carers of severe ME patients’ experiences of balancing work with comprehensive caregiving responsibilities

www.sciencedirect.com/science/arti...

Screenshot from latest Science for ME weekly update

#MEcfs #SevereME #PwME #CFS

The importance of work: A qualitative study of primary carers of severe ME patients’ experiences of balancing work with comprehensive caregiving responsibilities — Størdal and Iversen "This article explores how primary caregivers of people with severe ME experience combining work with their extensive caregiving responsibilities." Article | Thread
@exceedhergrasp1.bsky.socialOct 5, 2026, 11:39 PM

The paper cites my 2019 lay review of #MECFS science; along with the pacing guides, this was probably the first thing I passed off to Patient-Led in 2020/2021. (My first paper also cited, but that's less remarkable.)

It's an interesting paper overall, do check it out!

@stpaulsbay.bsky.socialOct 5, 2026, 11:38 PM

I am so tired of watching people prey on suffering #MECFS patients with brain retraining and high-priced supplements. None of that can fix an intracellular cortisol starvation that is invisible on standard blood tests.

@s4me.infoOct 5, 2026, 10:26 PM

Characterizing Host Inflammatory Bioprofiles in People With Postacute Sequelae SARS-CoV-2 Infection (PASC) — Marmont et al

#MECFS

@tomkindlon.bsky.socialOct 5, 2026, 10:23 PM

4/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "Like a battery that only partially charges and then drains ridiculously fast. I can feel the energy leave my muscles with every step I take or word I speak...." lit:. C H UK SCO36942 \ INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 5, 2026, 10:17 PM

3/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS "I have mild ME. Everyone assumes because it's mild it isn't that bad and in the scale of ME I'm lucky but it has changed my life. I can barely attend college and when I do it makes me very ill. If I go to college I don't have the energy to do anything else really. I can't read regularly and go out with my friends. I don't know if I will ever be able to work. My mental health took a massive hit especially when you watch people your age thrive and be able to do everything they want when you are so often stuck inside...." Response from ME Research UK Symptom Saturday Fatigue Survey RESEARCH UK SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 5, 2026, 9:18 PM

3/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "...Feels like a huge overcoat of concrete is over me..." REM UK SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 5, 2026, 9:14 PM

2/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS "...My partner finds it difficult to understand how things are for me. There can be tension there - he doesn't want to hear about how rough I feel, or what research has shown, and why I've not unloaded the dishwasher for example, when he's been at work all day...." Response from ME Research UK Symptom Saturday Fatigue Survey INFORM. INFLUENCE. INVEST. RESEA,CH UK SCO,6942
@exceedhergrasp1.bsky.socialOct 5, 2026, 9:04 PM

I just finished coding chief complaints and ancillary symptoms for every response in our Emergency Department survey! ✨

As you might expect, it's not a map of #MECFS / #LongCOVID symptoms so much as a map of the symptoms we find deeply concerning.

You may recall the next step is to zero in on 🧪🧵

@tomkindlon.bsky.socialOct 5, 2026, 8:11 PM

2/
What fatigue in ME/CFS feels like.

#mecfs #pwME #cfs #fatigue #chronicfatigue #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

What fatigue in ME/CFS feels like heavy leaden energy-depleted thinking and concentration affected drained battery not charging properly too exhausted to fulfill basic needs plug pulled weak like a constant flu weighed down by concrete wading through treacle increased gravity feeling bone deep exhaustion Recurring themes from ME Research UK Symptom Saturday Fatigue Survey INFORM. INFIINCE. INVEST. RESEARCH UK SCO36942
@s4me.infoOct 5, 2026, 7:55 PM

Neurocognitive Indices of Long COVID: Dysregulated Engagement of Inhibitory Control and Oscillatory Slowing — White et al

#MECFS

@tomkindlon.bsky.socialOct 5, 2026, 7:25 PM

🧵
Ultimately, fatigue in ME/CFS shrinks lives so severely it often takes a devastating toll on mental health. This impact is unsurprising given the immense loss of careers, relationships, hobbies, & independence.

tinyurl.com/fatigueimpac...

#mecfs #pwME #cfs #fatigue #ChronicFatigueSyndrome

1/

Impact of fatigue in ME/CFS "I lost my job, I don't leave my home. I miss appointments. I can't enjoy hobbies." Response from ME Research UK Symptom Saturday Fatigue Survey IC% RESEA,CH U K INFORM. INFLUENCE. INVEST.