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@tomkindlon.bsky.socialOct 6, 2026, 2:09 PM

7/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "Fatigue in ME/CFS is not tiredness as healthy people experience it. It is not tiredness after a busy day but more like the drained and weakened fatigue that healthy people would feel when they have a dose of flu and they are wiped out with all their strength gone...." 1414 RESEARCH UI SCC,6942 \ INFORM. INFLUENCE. INVEST.
@airiredcat.bsky.socialOct 6, 2026, 2:04 PM

Der #Hitzesommer war mit #MECFS eine Katastrophe. Mir fehlen fast 5 Monate, in denen ich kaum Bewerbungen schreiben oder kreativ sein konnte. Es hat mir Angst gemacht, dass die Verschlechterung dauerhaft ist.

Aber vorgestern habe ich mit Pumpking Pie experimentiert,

@tomkindlon.bsky.socialOct 6, 2026, 1:35 PM

6/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "Fatigue doesn't even begin to describe it. It feels like a whole body shut down...." MI UK SCO36942 IN FORM. INFLUENCE. INVEST.
@meassociation.org.ukOct 6, 2026, 1:31 PM

This MEA pilot funded project, led by Dr Amanda Heslegrave with the laboratory work being conducted by Sophie Hicks at UCL, aims to identify biomarkers that are unique to ME/CFS, unique to LC, or shared between the two conditions.

Read the latest update: https://meassociation.org.uk/pyw9

#MECFS

@stpaulsbay.bsky.socialOct 6, 2026, 1:25 PM

@thesicktimes.org
@betsyladyzhets.bsky.social
@mileswgriffis.bsky.social
@spichaksimon.bsky.social
@amymaxmen.bsky.social
@patientled.bsky.social
@lancet.bsky.social

#LongCOVID
#LongCovidResearch
#MECFS
#Genomics
#Neuroimmune
#Spoonie
#rs5522

@tomkindlon.bsky.socialOct 6, 2026, 1:23 PM

He is also on IG with the same username

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #meawareness #mecfsawareness

@tomkindlon.bsky.socialOct 6, 2026, 1:08 PM

5/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS "I struggled through by pacing myself & a sympathetic system that allowed me up to 6 months unpaid leave , but I couldn't care for my daughters in the way I wanted to" Response from ME Research UK Symptom Saturday Fatigue Survey RESEARCH UK SCO36942 INFORM. INFLUENCE. INVEST.
@pehpunkt.bsky.socialOct 6, 2026, 12:50 PM

alles bleibt im ungefähren stecken.

#jederTagMECFS #MECFS #LongCovid #MEAwareness

Bleistiftzeichnung eines Zimmers mit zwei Fenstern, darin links ein Bett und rechts ein Tisch mit Stuhl. Draussen sieht man ein Haus und einen belaubten Baum. Über dem Himmel ziehen sich weiße Wolken wie ein Schleier. Auf dem Bett liegt eine schlappe Person auf dem Rücken, die Beine lehnen an der Wand.
@srpassesiton.bsky.socialOct 6, 2026, 12:29 PM

Sad to read this. Bloody #mecfs

@mdmsel.bsky.socialOct 6, 2026, 12:15 PM

Heute ist Tag der pflegenden Angehörigen.
Als #Nuzunießer des Systems habe ich die ganze Nacht an der Seite meines schwerst #MECFS Kindes verbracht. Morgens übernahm der Vater. So ein Crash mit Zittern, Atemnot, Übelkeit und Schmerzen muss man auch als Pflegende aushalten.

@tomkindlon.bsky.socialOct 6, 2026, 11:42 AM

4/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS "...The change to a completely sedentary lifestyle is a major challenge and I am missing out on my retirement and not enjoying it. I can no longer engage with the same circle of friends. Adjusting to living with the condition is depressing." Response from ME Research UK Symptom Saturday Fatigue Survey RESEARCH UK ,C0692 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 6, 2026, 11:30 AM

5/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "Remember the time you were so exhausted you couldn't wait to go to sleep? I feel like that everyday. The difference is that when I wake up, I feel the same. Remember when you came down with the flu and felt like you were hungover, your head throbbed, you had no energy, and everything hurt? I feel like that everyday." RESEARCH UK SCO36942 \ INFORM. INFLUENCE. INVEST.
@chikocfm.bsky.socialOct 6, 2026, 11:01 AM

Chronic illness can change your routines, relationships and independence. Missing your old life doesn’t mean you’re ungrateful for the life you have now. It means you’re acknowledging what has changed. Your feelings deserve space💜
#Fibromyalgia #MECFS #ChronicIllness #ChronicPain #InvisibleIllness

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@michaelnobbs.bsky.socialOct 6, 2026, 10:37 AM

I'm late with today's #MorningView. I'm very tired and my gate felt a long way from my bed, but I'm pleased to have made it out here to see the sheep 🐑🐑🐑🐑🐑🐑

Wishing you as gentle a day as you need ❤️🐌

#MECFS #pwME #Wales #CreativeHabit

@mari-19.bsky.socialOct 6, 2026, 10:32 AM

en.wikipedia.org/wiki/Myalgic...
I worked up the most important newsletters of today, but the PETA France newsletter´s too big for now, I´ll go offline for today now due to #MECFS, 2 or 3 other newsletters´re also left.
#ByeBye to my online f(ur)riends with 4 cute #TrashPanda pics.
🦝🦝🦝💖💖💖

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@assistenzhund-leo.bsky.socialOct 6, 2026, 10:11 AM

📸 Ein kleiner Schnappschuss von einem besonderen Tag.

#assistenzhundleo #mecfsassistenzhund #assistenzhund #assistenzhundalltag #einheitsfeier #tagderdeutscheneinheit #bremen #assistenzhundunterwegs #mecfs #leoderlabrador #LabradorLiebe