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@tomkindlon.bsky.social Oct 6, 2026, 3:10 PM

7/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

@arizona10238417.bsky.social Oct 6, 2026, 3:08 PM

Wenn die letzte Kraft für

ES REICHT

verwendet wird 😪

#FehlendeGrundversorgung
#MECFS
#Chefsache
@oezdemir.de
@gruene.de
@cducsu.de

@tomkindlon.bsky.social Oct 6, 2026, 3:06 PM

8/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

$FATIGUE IN ME/CFS "Exhaustion in my bones. Like walking through treacle...." RESEARCH UK SCO36942 '\ INFORM. INFLUENCE. INVEST.$

@livingevil.de Oct 6, 2026, 2:43 PM

So, gerade mit dem Sanitätshaus gesprochen und einen Termin für meine Rollstuhlberatung erhalten.
Am Donnerstag darf ich testen und mir jetzt schon mal die Modelle online ansehen.

Hab mich schon in einen verguckt! 😍

#elektroRollstuhl #Mobilität #MECFS

@meassociation.org.uk Oct 6, 2026, 2:16 PM

David Tuller interviews George Monbiot on recent Guardian article: 'Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed'.

Read a summary and extracts or watch the full interview here: https://meassociation.org.uk/y82q

#MECFS

@tomkindlon.bsky.social Oct 6, 2026, 2:14 PM

6/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS
"...I had to stop working, that had a huge impact on my mental health, I felt useless. My income and independence were gone and I felt like I wasn't a person who had anything to give anymore. I had to give up sports, hiking and anything that used my energy. My family life suffered, my partner became my carer. I couldn't do many things for my child and felt so guilty that she had a sick parent. Our lives changed from being very active to almost nothing...."
Response from ME Research UK Symptom Saturday Fatigue Survey
RESEARCH K ,CO36942
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Oct 6, 2026, 2:09 PM

7/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

$FATIGUE IN ME/CFS "Fatigue in ME/CFS is not tiredness as healthy people experience it. It is not tiredness after a busy day but more like the drained and weakened fatigue that healthy people would feel when they have a dose of flu and they are wiped out with all their strength gone...." 1414 RESEARCH UI SCC,6942 \ INFORM. INFLUENCE. INVEST.$

@airiredcat.bsky.social Oct 6, 2026, 2:04 PM

Der #Hitzesommer war mit #MECFS eine Katastrophe. Mir fehlen fast 5 Monate, in denen ich kaum Bewerbungen schreiben oder kreativ sein konnte. Es hat mir Angst gemacht, dass die Verschlechterung dauerhaft ist.

Aber vorgestern habe ich mit Pumpking Pie experimentiert,

@tomkindlon.bsky.social Oct 6, 2026, 1:35 PM

6/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS
"Fatigue doesn't even begin to describe it. It feels like a whole body shut down...."
MI UK SCO36942
IN
FORM. INFLUENCE. INVEST.

@meassociation.org.uk Oct 6, 2026, 1:31 PM

This MEA pilot funded project, led by Dr Amanda Heslegrave with the laboratory work being conducted by Sophie Hicks at UCL, aims to identify biomarkers that are unique to ME/CFS, unique to LC, or shared between the two conditions.

Read the latest update: https://meassociation.org.uk/pyw9

#MECFS

@stpaulsbay.bsky.social Oct 6, 2026, 1:25 PM

@thesicktimes.org
@betsyladyzhets.bsky.social
@mileswgriffis.bsky.social
@spichaksimon.bsky.social
@amymaxmen.bsky.social
@patientled.bsky.social
@lancet.bsky.social

#LongCOVID
#LongCovidResearch
#MECFS
#Genomics
#Neuroimmune
#Spoonie
#rs5522

@tomkindlon.bsky.social Oct 6, 2026, 1:23 PM

He is also on IG with the same username

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #meawareness #mecfsawareness

@tomkindlon.bsky.social Oct 6, 2026, 1:08 PM

5/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS
"I struggled through by pacing myself & a sympathetic system that allowed me up to 6 months unpaid leave , but I couldn't care for my daughters in the way I wanted to"
Response from ME Research UK Symptom Saturday Fatigue Survey
RESEARCH UK SCO36942
INFORM. INFLUENCE. INVEST.

@pehpunkt.bsky.social Oct 6, 2026, 12:50 PM

alles bleibt im ungefähren stecken.

#jederTagMECFS #MECFS #LongCovid #MEAwareness

Bleistiftzeichnung eines Zimmers mit zwei Fenstern, darin links ein Bett und rechts ein Tisch mit Stuhl. Draussen sieht man ein Haus und einen belaubten Baum. Über dem Himmel ziehen sich weiße Wolken wie ein Schleier.
Auf dem Bett liegt eine schlappe Person auf dem Rücken, die Beine lehnen an der Wand.

@srpassesiton.bsky.social Oct 6, 2026, 12:29 PM

Sad to read this. Bloody #mecfs

@mdmsel.bsky.social Oct 6, 2026, 12:15 PM

Heute ist Tag der pflegenden Angehörigen.
Als #Nuzunießer des Systems habe ich die ganze Nacht an der Seite meines schwerst #MECFS Kindes verbracht. Morgens übernahm der Vater. So ein Crash mit Zittern, Atemnot, Übelkeit und Schmerzen muss man auch als Pflegende aushalten.