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@tomkindlon.bsky.social Sep 7, 2026, 6:29 PM

6/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

COGNITIVE DYSFUNCTION (BRAIN FOG) IN ME/CFS
"Slow, fuzzy feeling. Like wading through treacle. Forget basic things”
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Sep 7, 2026, 5:18 PM

6/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS
"... I'd been an artist all my life and suddenly I couldn't draw! I was horrified. Then I discovered I couldn't read a book after being an avid reader all my life. Friends didn't understand, and I couldn't explain how I felt. I'd nothing to compare it to. I lost friends and relatives because I hadn't the wherewithall to join in."
Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey
gilh RESEARCH UK SCO36942
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Sep 7, 2026, 3:10 PM

5/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

COGNITIVE DYSFUNCTION (BRAIN FOG) IN ME/CFS
"Consider my brain the British Library, filled with loads of knowledge and information. On a good day I can access the lot, know where everything is, complete tasks, read, and be fully present. On an offish day the catalogue is missing. I know the information is in there, I just can't find it. On an badish day the library is in another language I don't understand. I can't translate the questions let alone find the answers. On a really bad day, I'm locked outside."
aft RESEARCH UK SCO36942
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Sep 7, 2026, 2:02 PM

5/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS
"Couldn't do my job that I loved. It nearly broke my heart to have to get Medical Retirement. For some reason, I just couldn't do what I'd always done before with no problems...."
Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey
hill% R E SiEjAr H SCO36942
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Sep 7, 2026, 12:54 PM

4/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

COGNITIVE DYSFUNCTION (BRAIN FOG) IN ME/CFS
"It feels like my brain just stalls. I can know something, sometimes something I know very well, but I can't access it or put it together. I lose what I was thinking about halfway through a thought..."
REsofir SCO36942
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Sep 7, 2026, 11:10 AM

4/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

@tomkindlon.bsky.social Sep 7, 2026, 10:15 AM

3/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

COGNITIVE DYSFUNCTION (BRAIN FOG) IN ME/CFS
"Words or phrases that I know well don't come to mind. It's as if a blank wall comes down and says 'no more'..."
RESEARCH UK SCO36942
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Sep 6, 2026, 10:59 PM

3/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS
"Cannot socialise in a group. Cannot drive"
Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey
RESEARCH UK SCO36942
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Sep 6, 2026, 7:40 PM

2/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS
"I was a lawyer, but I can no longer work due to the cognitive dysfunction from ME/CFS and POTS. Life admin (health, parenting, finances etc), once the footnote at the end of each day, is now my full-time, unpaid job. Yet, I'm still drowning because my brain doesn't function efficiently enough ...."
Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey
larik RESEARCH UK SCO36942
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Sep 6, 2026, 3:48 PM

🧵
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS
"I'm just about to lose my job. I haven't been able to attend for months. I used to be a multi tasking, problem solving, target meeting, very hard worker. Now I can barely coordinate my medical appointments or reliably string a sentence together."
Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey
R E SiEjAit C H SCO36942
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Sep 6, 2026, 12:03 AM

4/
“(Contd) This is not only something that happened in the past. It continues today. My symptoms are still questioned, my limitations are still doubted, and I still have to justify that I am genuinely ill.”

#MyalgicE

@tomkindlon.bsky.social Sep 5, 2026, 6:27 PM

3/
“Living with ME has moved them from being defined by what they do toward being, in their words, more of a human being than a human doing”

#PwME #MyalgicE

Participant shared that they are struck by the depth of wisdom and the kindness

people show one another on these calls, and that years ago they learned to ask, “What

can I learn from this?” Living with ME has moved them from being defined by what

they do toward being, in their words, more of a human being than a human doing,

and after five years they have come to experience the illness as, in many ways, an

unasked-for gift.

@meactionuk.bsky.social Sep 4, 2026, 2:20 PM

The video of the entire session is available here www.scottishparliament.tv/meeting/heal... Contributions from the Third Sector organisations begin around 11:11:29
#MyalgicEncephalomyelitis #MyalgicE #ScottishParliament

@meactionscotland.bsky.social Sep 4, 2026, 2:20 PM

@tomkindlon.bsky.social Sep 3, 2026, 3:04 PM

2/
Official description of the book, "Ascent of Crime", and Dr Bansal

Link:
www.amazon.co.uk/Ascent-Crime...

#MECFS #PwME #MyalgicEncephalomyelitis #MyalgicE

Official description:
"While in the final year of his veterinary course, Ben becomes profoundly ill. After a slow and difficult improvement, impeded by the disbelief of his medical carers, he becomes disabled by a continual exhaustion. He is ultimately diagnosed with Myalgic Encephalomyelitis (ME) but to his further dismay he then develops a marked hypersensitivity of his hearing and sense of smell. A chance meeting with an open-minded surgeon leads him to a job in cybersecurity with the police and then on a journey in which his disability becomes a much valued asset in the fight against crime."
Dr Bansal sent me this which he told me is on the back:
"Amolak Bansal is a retired clinical immunologist and allergist who has worked in several countries around the world and in his last position in south London also ran one of the UK's national centres for ME/CFS. In addition to his work on immune deficiency and allergy, he has written numerous research papers on the underlying immune issues in ME/CFS and also how the condition may be diagnosed and managed. Despite long Covid now being recognised as a genuine and disabling condition caused by a virus, he is keen to rectify the common misunderstanding that ME/CFS is a psychological illness. This novel is based on his investigation and management of several thousand patients with this condition and their fight to be properly understood and cared for."

@tomkindlon.bsky.social Sep 3, 2026, 2:59 PM

🧵
The new novel by retired ME/CFS expert physician, Dr Amolak Bansal, is now available on Kindle.

The main character has ME!

I haven’t seen any reviews

#MECFS #PwME #MyalgicEncephalomyelitis #MyalgicE

@crashmargulies.bsky.social Sep 3, 2026, 8:05 AM

New blog: Math is hard, PEM is harder.
crashmargulies.dreamwidth.org/34488.html

#PostExertionalMalaise #pwME #MEcfs #MyalgicE