@europeanmealliance.bsky.socialCS Caritas Socialis Hosts the First Specialist Congress on ME/CFS in Vienna
"What can we do now for people with ME/CFS?"
www.europeanmealliance.org/news-Q42026-...
#MECFS #Austria #Wien #CSNordlicht #EuropeanMEAlliance
@abrokenbattery.bsky.socialThe worsening of symptoms after minimal activity is called Post-exertional malaise, and is a hallmark feature of #MECFS. In some cases it can lead to a relapse and a long term reduction in a person's energy limits.
Definition from the NICE guideline NG206
@abrokenbattery.bsky.social“I can’t even get dressed by myself anymore or press buttons or things like that.”
9 year old Annabelle describes the impact of #MECFS which she developed following Covid, and how exertion can make her symptoms worse. #LongCovid
@erinmarilee.bsky.socialIt’s officially #BigSitToCureME time! I am in my circle, a cup of brewed cacao in hand, waiting for sunrise in half an hour.
Confession: I’ve been birding almost 2 years but I’ve never birded at sunrise because my #MECFS symptoms are at their worst in the morning. Excited for my first dawn chorus!
@lyssinum.bsky.socialEiner meiner unerfüllbaren Träume ist, mal in den Giftgarten zu kommen. Leider werde ich wohl nur darüber lesen.😢
#MEcfs
www.reisereporter.de/reiseziele/e...
@rippermd41.bsky.socialMay 2023 my #MECFS worsened and I became housebound and 95-97% bedbound.
In the past 3 years I left the house 9 times, all for in-person doctors’ appts.
Every excursion triggered post-exertional malaise (PEM).
A few caused a drop in my baseline.
And yet…
@fwm.bsky.socialWir sind eine der Familien mit Jugendlichen mit #mecfs , bei denen das Jugendamt eine sehr problematische Rolle gespielt hat. Wir konnten größeren Schaden aber verhindern. "Bei Ihnen mussten wir schnell kommen, denn Sie wohnen in [Stadtteil]" war nur eines der Lowlights.
@dioneira.bsky.socialLiege im Bett, fühle mich wie aus Blei und frage mich "Wie geht noch mal aufstehen?"🫠 #MECFS
@neurostingl.bsky.socialDas @bmasgpkaut.bsky.social lädt für eine #MECFS Gutachterschulung einen nicht-ME/CFS-Experten einer Institution ein, die für ihre ME/CFS-Gutachten in der Kritik steht.
Die 2 größten ME/CFS-Expertinnen in 🇦🇹 (NRZ, EU Horizons Grant, etc): nicht dabei.
Das BMASGPK finanziert das NRZ.
Absurd.
@erinmarilee.bsky.socialTomorrow (Sunday) is The Big Sit! Our family will spend the day in a 17ft circle trying to find as many birds as possible to raise funds for #MECFS research. We’re inviting people to donate $1 per bird we (or you) find to @openmedf.bsky.social
@neuroautoimmunity.bsky.social🧠 Excited to be speaking at the 4th PRIME Webinar: The Neurology of #MECFS!
Join us to explore emerging research on neurological mechanisms in ME/CFS and opportunities for better treatments.
📅 October 28 | 2–5 PM GMT
🔗 Register: us02web.zoom.us/webinar/regi...
@thorsten-runge.bsky.social02:58 Uhr – Frühstück. #sekundaererKrankheitsgewinn
So, dann mal Frühstück.
Die Tiger haben mich ein paar Stunden früher geweckt als geplant.
@bigpolarbear.bsky.social今日は花をお届けします😃
筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。
#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge
@tomkindlon.bsky.socialLow Vasopressin in Myalgic Encephalomyelitise/Chronic Fatigue Syndrome
Vasopressin is also known as antidiuretic hormone
www.endocrinepractice.org/article/S153...
Screenshot from AMMES October 2026 newsletter
#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@tomkindlon.bsky.socialDoes Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Represent a Poly-Herpesvirus Post-Virus Infectious Disease?
Screenshot from AMMES October 2026 newsletter
#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@melmecfs.bsky.social
@camillebuckner.bsky.social
@mari-19.bsky.social