Thank you to all of our sponsors who helped make Long Island's Dystonia Zoo Day a success!
#dystonia #dmrf #dystoniafoundation

Thank you to all of our sponsors who helped make Long Island's Dystonia Zoo Day a success!
#dystonia #dmrf #dystoniafoundation
Join us in Rochester, NY on Oct. 3 for Rochester's Dystonia Zoo Day.
Be sure to register by the Sept. 16 t-shirt deadline so you can proudly show others that you are a member of DMRF Zoo Crew!
Register today at https://bit.ly/47ENgbv
You deserve a day that's all about YOU.
On Wed, Sept. 30 at 6p CT | 7p ET, take time to recharge, learn and connect with others who understand life with dystonia at DMRF’s Virtual YOU Day.
Learn more and reserve your free spot today: https://bit.ly/3RNQqEx
#dystonia #dmrf #dystoniafoundation
Join us for Boston Dystonia Zoo Day on Oct. 4.
Zoo Day is a way to come together and remind each other that no one has to face dystonia alone.
Register by the Sept. 16 t-shirt deadline to be a member of DMRF Zoo Crew!
Register today: https://bit.ly/48slhd0
Stay in the know about what is happening with research, advocacy, education and other resources in the #dystonia community with the DMRF monthly e-newsletter.
The September e-news is now available: https://conta.cc/4xxsBjT
#dmrf
Oromandibular dystonia causes involuntary muscle contractions in the jaw, tongue and lower face which affects speaking, chewing and swallowing.
Learn more about dystonia and help raise awareness during our Ask Me About Dystonia campaign in Sept.
Pittsburgh Dystonia Zoo Day is almost here!
Join us at the Pittsburgh Zoo on Sept. 13 for a day of connection, encouragement, and community.
Check-in and registration begin at 9 am, with the program starting at 10 am.
Long Island Dystonia Zoo Day is almost here!
Join us at Suffolk County Farm on Sept. 12 for a day of connection, encouragement, and community.
Check-in and registration begin at 9:30 am, with the program starting at 10:30 am.
Sept. is Dystonia Awareness Month so honor someone who inspired you with a 50th Anniversary Tribute.
Celebrate someone special while creating hope for the next generation of families affected by dystonia. It’s gratitude in action.
Learn more: https://bit.ly/4jFiy65
#dystonia #dmrf
Did You Know?
Dopa-responsive dystonia (DRD), aka Segawa’s disease or DYT5 dystonia, often responds well to levodopa, a synthetic dopamine.
Help us increase awareness and understanding of dystonia this September by Liking and Sharing this post.
Join the DMRF on Sept. 9 for a webinar about deep brain stimulation (DBS) for dystonia.
Speakers:
🔹Neepa Patel, MD, Rush University, Chicago
🔹Liz Rawson, DMRF Board member and DBS patient
Wed. Sept. 9
6:00p CT | 7:00p ET
Register today: https://bit.ly/4vZROBK
#dystonia #dmrf #dystoniafoundation
Connecticut's Dystonia Zoo Day will take place in Hanson Cabin at the Beardsley Zoo in Bridgeport on Nov. 1!
This is a chance to connect, share and build community. Enjoy a fun day at the zoo with people who understand.
Register today: https://bit.ly/3qDcN1W
David Standaert, MD, PhD, has been appointed as VP for Research at the University of Alabama at Birmingham (UAB).
He is a valued member of the dystonia community who has worked with the DMRF in many capacities.
Congratulations!
Read more: https://bit.ly/46l96zb
#dystonia
Blepharospasm is a type of focal dystonia that causes involuntary contractions of the eyelid and brow muscles.
Help spread awareness of dystonia this September by liking and sharing this post and invite your social network to Ask Me About Dystonia.