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Version devBuilt at: 2026-10-13 22:15:16 EDT

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@toriabanks.bsky.socialOct 7, 2026, 1:14 PM

It’s interesting because I’ve been grateful for him taking on the #MECFS scandal, including just this week - which is an object lesson in all channels ‘fuck you, you don’t matter, we’re never wrong and if you object you’re an extremist’ yelled at the powerless in a posh voice.

@arizona10238417.bsky.socialOct 7, 2026, 12:31 PM

#MCAS

Oh, da bin ich raus

#LasDasMalDenHausarztMachen

#MECFS #Chefsache @oezdemir.de

Es ist grausam, wenn ein Mensch sein Leben immer weiter verliert und die Angehörigen eine nichtvorhandene Versorgung vergeblich suchen @zdfmagaz.in @zdfde.bsky.social @jokoundklaas.bsky.social

@melmecfs.bsky.socialOct 7, 2026, 11:15 AM

Heute Nachmittag liest Martin Rücker aus seinem Buch "Anna und das Biest".

Die Online-Veranstaltung ist kostenlos.
Hier kann man sich anmelden:

www.berlin.de/land/kalende...

#MECFS #LongCovid #PostCovid #PostVac

@andrewgiffordphoto.bsky.socialOct 7, 2026, 11:14 AM

DWP and NHS services for someone with ME/CFS are nothing but cruel. Got £59 fine from NHS for my obtaining free prescriptions (beta blockers, Omeprazol, nose spray, NOT for treating my disease, which NHS can't be arsed to support). #NHS #DWP #MECFS

@tomkindlon.bsky.socialOct 7, 2026, 10:59 AM

Recording of the 24 September 2026 ME Support webinar featuring Chris Ponting @cgatist.bsky.social is up:

www.youtube.com/watch?v=UJYU...

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME



THE UNIVERSITY of EDINBURGH 
upport - uest Speaker nt with Chris Ponting 
ME: ME/CFS & biomarker udies ME Support 
Navigating ME/CFS and Long COV.
@simsamzi.eurosky.socialOct 7, 2026, 10:48 AM

Soviel zum Thema "will nur nicht"! Wer das glaubt, hört nicht richtig zu! #MECFS

@mari-19.bsky.socialOct 7, 2026, 10:34 AM

en.wikipedia.org/wiki/Myalgic...
Due to the #MECFS I knew I wouldn´t manage to check ALL of today´s important newsletters, in spite of "speed-posting", now I´ll go offline for today.
#ByeBye to my online f(ur)riends, with 4 cute #TrashPanda photos.
Too many newsletters or too little time?
😱😱😱🦝🦝🦝💖💖💖

Photo, no descriptionPhoto, no descriptionPhoto, no descriptionPhoto, no description
@martinruecker.bsky.socialOct 7, 2026, 10:31 AM

⚡️ HEUTE ABEND, 17 Uhr: Online-Lesung zu #LongCovid #MECFS - Recherchen aus meinem Buch "Anna und das Biest". Kostenlose Anmeldung noch möglich unter: www.berlin.de/land/kalende...
Alle Infos zum Buch + versandkostenfreie Bestelloption: anna-und-das-biest.de

@astridhainzl.bsky.socialOct 7, 2026, 9:40 AM

Wer eine #MECFS Behandlungsstelle als Reha mit Bewegungs- und Psychotherapie umsetzt, hat nicht nur nichts verstanden, sondern schadet Betroffenen gleich mehrfach.

Dass die Stelle trotzdem sofort überlaufen ist, zeigt wie hoch die Verzweiflung und der Druck sind.

@michaelnobbs.bsky.socialOct 7, 2026, 9:21 AM

A wonderfully smokey grey sky greeted me at my gate this morning as I filmed my #MorningView.

Grey skies always make resting easier, and resting is what I'm going to be doing today.

I wonder what sort of day you're going to be having ❤️🐌

#MECFS #pwME #Wales #CreativeHabit

@abrokenbattery.bsky.socialOct 7, 2026, 9:15 AM

Highlights from ‘ME and Me' BBC Newsbeat documentary about young people with #MECFS aired in 2018
Full video (32 mins)
youtu.be/XLPCuEdqIWY

@abrokenbattery.bsky.socialOct 7, 2026, 9:14 AM

People with severe #MECFS can struggle to eat or drink because of difficulty swallowing, gastrointestinal problems, or simply being too debilitated. Some patients require tube feeding, but it is often delayed until it becomes life threatening.

www.mdpi.com/2227-9032/9/...

@abrokenbattery.bsky.socialOct 7, 2026, 9:00 AM

“You’re fighting the illness, but then you’re fighting every health professional.”

Hannah was struggling to digest food and losing weight, but healthcare professionals thought she had an eating disorder. 8 years later, this is still happening to people with severe #MECFS.

@meassociation.org.ukOct 7, 2026, 8:15 AM

1/2: We're looking for people who want to share their experience of ME/CFS and how the ME Association has helped them over the years. 

#MECFS

IMAGE DESCRIPTION: Photo of a cup of tea and a notepad and pen with 'Share Your Story' written on it.
Heading: "Can you share your story with the ME Association?"
@mari-19.bsky.socialOct 7, 2026, 6:53 AM

#ZDFmitreden Umfrage, aber ich kann die neuen #Soko Folgen wegen #MECFS am Vorabend nicht gucken.
www.mitreden.zdf.de/rsp/0bc30a63...
@zdfheute.de.web.brid.gy

Photo, no description
@marlaamara.bsky.socialOct 7, 2026, 2:19 AM

Frau @schumannkorinna.bsky.social für soviel Verachtung von #Mecfs Betroffenen fehlen mir nur noch die Worte.
Was die Krone nicht schafft, schaffen Sie mühelos im Alleingang.
Die Bedeutungslosigkeit der SpÖ schreitet munter voran.
Danke für NICHTS!