I don't know if anyone will ever realize how hard I fought to save people from a physical prison. I found the mechanism & recovery path for #MECFS, now in a peer-reviewed journal. Patients contact me saying they are better, yet it feels like yelling into a void. Please help amplify. 🧬💙 #pwME #rs5522

WHOA

Ngl though, if they can exempt a whole borough, they can exempt a disease that makes 75% of people unable to work #MECFS #FrailAndFurious @meactnet.bsky.social

6/
Some people with ME/CFS complain they can feel groggy in the morning. But maybe rather than fight, it could be welcomed as an opportunity to get good rest?

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

The molecular mechanism is fully proven—our 2026 BBRC paper established the high-affinity MR cortisol steal past the cell wall using functional in vitro assays. The downstream application to #MECFS is the translational framework currently being replicated by patients who are improving.

Is your child missing school because of #MECFS or #LongCOVID? Join Emerge Australia and MissingSchool for a free online session on educational supports for students with chronic illness. 📅 15 Oct, 2pm AEDT 🔗 zurl.co/6Ldjy

#MECFS #LongCOVID #pwME #NEISvoid #Spoonie #LongCovidResearch #Genomics #OpenScience
#Biosky #Medsky

Researchers point to a "unifying theory" of chronic fatigue/disease, mapping shared disturbed biological networks across #MECFS, Long COVID, MS, & RA.
But they miss the root cause. This network crash is driven by #rs5522 overactive MR receptors stealing the cortisol needed to fuel cells. 🧬🔋

5/
Somebody elsewhere asked about what "feet up" means in this case:

So I am lying on a couch with my feet on top of cushions which are on top of the elevated end of a couch

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Please join me in supporting Mori on their birthday. Mori lives with severe #MECFS, which is more painful & debilitating than you could ever imagine. Mori needs to know: We love you, we support you, and you matter. Match my $50? Thank you. And HAPPY BIRTHDAY, SWEET MORI!!!🧡🧡🧡🧡🧡

2/

I have noticed this pattern for last month.

I think of it as a continuation of my sleep even though I spend some of the time mentally active, reading and on social media, alternating with some time listening to music.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Having my disability cut by nearly £400 is really taking it's toll.
Every little helps. 💖
#spoonie #vtuber #vsky #ffxivstreamer #twitchaffiliate #disability #chronicillness #cfsme #mecfs #smallstreamer #helpsky #mutualaid #maboost #invisbleillness #indievtuber #helpfolkslive

Behördlicher #Ableismus bei #MECFS : Ignoranz

Inzwischen ist die Akteneinsicht ausgewertet. Es ist spannend, das zu lesen, was beim Redigieren übersehen wurde - es lässt schlimmes erwarten. Und die untergeordnete Behörde drangsaliert und nicht nur, sondern verkauf uns für dumm. Schlechte Idee.

Heard of the FOXP4 gene link to increased #LongCovid? It can't be understood without #rs5522. When the overactive MR vacuum steals cortisol at the gate, it starves the GR pathways needed to fuel the FOXP4 lung barrier repair program. 🧬🫁🔋 #MECFS