Grilled Cheese

ExploreLog inSign up
Terms of UsePrivacy PolicyCommunity StandardsHelpGet the app

Grilled Cheese is a product of Village Compute

Version devBuilt at: 2026-10-13 22:15:16 EDT

Explore

PostsPeople
LatestRanked
Load more
@tomkindlon.bsky.socialSep 8, 2026, 6:48 PM

Comprehensive review of myalgic encephalomyelitis/chronic fatigue syndrome

link.springer.com/article/10.1...

s4me.info/threads/comp...

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS

Comprehensive review of myalgic encephalomyelitis/chronic fatigue syndrome — Jeyaraman et al Opinion. "To address the challenges of the unique features, complexity and heterogeneity of ME/CFS, strong partnerships with patients are crucial for the design and implementation of research." Article | Thread
@tomkindlon.bsky.socialSep 8, 2026, 4:06 PM

10/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

COGNITIVE DYSFUNCTION (BRAIN FOG) IN ME/CFS "It is like my IQ dropped 40 points. I used to be intelligent, but now I don't understand simple things anymore. I feel so stupid and insecure because of this. I have to check everything I do to see if it is correct." R ElidU CH SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 8, 2026, 2:39 PM

9/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

COGNITIVE DYSFUNCTION (BRAIN FOG) IN ME/CFS "I lose words - just can't find them. I also lose the ability to form sentences and speak properly when I've "overdone' it. Overdoing it is always something very small - like talking too long with friends or standing up too long washing-up etc...." Lith RESLEJAIICH SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 8, 2026, 1:27 PM

9/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS "My PhD and academic career are on long term hiatus because of ME/CFS, and one of the biggest factors is the brain fog. I cannot properly concentrate on anything that requires actual brain input for more than 20 minutes before both my mind and body shut down and I am useless for hours following..." Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey aldrA RESEARCH UK SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 8, 2026, 12:54 PM

New:

Stigmatization in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): A scoping review

psycnet.apa.org/record/2028-...

"Individuals with ME/CFS can be profoundly affected by stigmatization"

#MEcfs #PwME #CFS

Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a severe chronic, multisystemic disease characterized by postexertional malaise, cognitive impairments, and pain. There is no curative treatment yet. Stigmatization is prevalent in several chronic illnesses, impacting patients’ quality of life and health outcomes. This review aimed to examine the types and effects of stigmatization experienced by individuals with ME/CFS. This scoping review followed the Preferred Reporting Items for Systematic review and Meta-Analysis extension for Scoping Reviews guidelines. A systematic literature search was executed across six electronic databases, complemented by citation searching. The screening was performed independently by two researchers. We included 44 studies in this review. The most commonly assessed type of stigma was perceived stigma (n = 7); however, the majority of studies (n = 33) did not specify the type of stigma assessed. Our findings showed that not only individuals with ME/CFS can be affected by stigmatization but also people in their social circles such as friends and family members. Stigmatization was reported in various areas of life, but the most frequently identified issue were stigmatizing experiences by health care professionals such as physicians. Stigmatization was found to contribute to poorer health outcomes, delays in diagnosis, and broader personal and societal consequences. Individuals with ME/CFS can be profoundly affected by stigmatization. Further research should investigate the experiences of children and (very) severely ill patients. Research is also needed to develop strategies to reduce stigmatization in health care and other settings and to improve the quality of care for individuals with ME/CFS. (PsycInfo Database Record (c) 2026 APA, all rights reserved)
@cfscounselling.bsky.socialSep 8, 2026, 12:00 PM

We're closed today for an extended #LabourDay weekend, but #CFS' programs and services will be back in action tomorrow! Our booking portal is always open at https://cfssc.ca/ #HopeLivesHere

Photo, no description
@tomkindlon.bsky.socialSep 8, 2026, 10:01 AM

8/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

COGNITIVE DYSFUNCTION (BRAIN FOG) IN ME/CFS R6IESOArH SCO36942 "Head full of cotton wool." INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 7, 2026, 10:37 PM

8/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS "My family are used to it, after 20 years. They just help me as much as possible. I am very grateful for them. If I am out, it is more obvious that I struggle. When I talk to people, and can't find words, or say something wrong, I get looks of pity, or confusion. I really don't like the looks of pity." Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey tri RESEARCH UK SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 7, 2026, 8:35 PM

7/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

COGNITIVE DYSFUNCTION (BRAIN FOG) IN ME/CFS "Sometimes it's like an invisible pause button has been pressed in my brain, and I just can't think anymore. Other times it's like a sense of static in my brain, and I can't think clearly until I sit or lie down to recover. If I don't rest my brain, it leads to me stuttering and or increased stilted speech..." 611% R ES,EjAik C H SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 7, 2026, 7:23 PM

7/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS "Since it's not measurable and changes day to day or hour to hour working is not available where you can call in without advance warning because your brain is on hiatus. It often makes me feel stupid when I'm anything but..." Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey 611% RESiEjAr H SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 7, 2026, 7:03 PM

PRIME International Symposium a two-day hybrid event exploring the latest developments in ME/CFS research

Links
www.actionforme.org.uk/register-for...

www.actionforme.org.uk/wp-content/u...

www.tickettailor.com/events/unive...

Screenshot from latest Science for ME update

#MEcfs #PwME #CFS

PRIME International Symposium a two-day hybrid event exploring the latest developments in ME/CFS research. 9 am on 28 September to 2 pm on 29 September at the John McIntyre Conference Centre in Edinburgh, with online attendance also available. "The PRIME Symposium will see the launch of the new International Genetic Epidemiology of ME/CFS Consortium, as well as provide a platform for Early Career Researchers and the Patient and Public Involvement Research Involvement Hub to present exciting new research and supporting activities." Article | Preliminary programme | Registration | Thread
@tomkindlon.bsky.socialSep 7, 2026, 6:29 PM

6/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

COGNITIVE DYSFUNCTION (BRAIN FOG) IN ME/CFS "Slow, fuzzy feeling. Like wading through treacle. Forget basic things” INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 7, 2026, 5:18 PM

6/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS "... I'd been an artist all my life and suddenly I couldn't draw! I was horrified. Then I discovered I couldn't read a book after being an avid reader all my life. Friends didn't understand, and I couldn't explain how I felt. I'd nothing to compare it to. I lost friends and relatives because I hadn't the wherewithall to join in." Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey gilh RESEARCH UK SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 7, 2026, 3:48 PM

The union news site Arbetsvärlden in Sweden writes about the hardship patients with ME face when assessed for being fit to work

Google translation links
translate.google.com/translate?sl...

www-arbetsvarlden-se.translate.goog/forsakringsk...

Screenshot from Science for ME update
#MEcfs #PwME #CFS

Sweden The union news site Arbetsvärlden writes about the hardship patients with ME face when assessed for being fit to work in a system with little understanding of ME and fluctuating illnesses. Johan Helander tells his story of being deemed fit to work despite his doctor saying he may never be able to work again. After six years of sick pay, all financial support has now stopped. In a follow up article the Swedish Social Insurance Agency say that they make a broad consideration in these cases. Article (Swedish) l Article (Swedish) l Thread
@tomkindlon.bsky.socialSep 7, 2026, 3:10 PM

5/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

COGNITIVE DYSFUNCTION (BRAIN FOG) IN ME/CFS "Consider my brain the British Library, filled with loads of knowledge and information. On a good day I can access the lot, know where everything is, complete tasks, read, and be fully present. On an offish day the catalogue is missing. I know the information is in there, I just can't find it. On an badish day the library is in another language I don't understand. I can't translate the questions let alone find the answers. On a really bad day, I'm locked outside." aft RESEARCH UK SCO36942 INFORM. INFLUENCE. INVEST.
@cfscounselling.bsky.socialSep 7, 2026, 3:01 PM

Happy #LabourDay to everyone in #SimcoeCounty! We want to hear what you'll be doing with your day of rest, so share your plans in the comments below. #CFS #HopeLivesHere

Photo, no description
@cfscounselling.bsky.socialSep 7, 2026, 2:40 PM

We're closed today and tomorrow for #LabourDay, but #CFS' programs and services will re-open Wednesday! Our booking portal is always open at https://cfssc.ca/ #HopeLivesHere

Photo, no description
@tomkindlon.bsky.socialSep 7, 2026, 2:02 PM

5/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS "Couldn't do my job that I loved. It nearly broke my heart to have to get Medical Retirement. For some reason, I just couldn't do what I'd always done before with no problems...." Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey hill% R E SiEjAr H SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 7, 2026, 1:36 PM

ME/CFS Tube Feeding Survey Report by the British Association of Clinicians in ME/CFS

meassociation.org.uk/wp-content/u...

s4me.info/threads/uk-b...

Screenshot from latest Science for ME weekly update

#MEcfs #SevereME #PwME #CFS

UK BACME ME/CFS Tube Feeding Survey Report by the British Association of Clinicians in ME/CFS. A detailed report including quotes from clinicians, carers and people with ME/CFS. The report concludes with a list of recommendations including nutritional screening; development of standardised clinical guidance; and individualised ME/CFS-informed implementation. Report | Thread