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Version devBuilt at: 2026-10-12 04:31:30 EDT

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@rpimpactinitiative.bsky.socialSep 11, 2026, 6:45 PM

Before a fundraising ask, five questions need written answers: recipient, exclusive RP earmarking, costs, independent research selection and reporting.

Clarity first. Fundraising second.
#RetinitisPigmentosa #ResearchFunding

Square RP Impact Initiative graphic in dark blue, violet and turquoise. Five illuminated checkpoints represent recipient, earmarking, costs, research selection and reporting. Large English text reads: Five questions before a public fundraising ask.
@rpimpactinitiative.bsky.socialSep 10, 2026, 7:26 PM

Bij Retinitis Pigmentosa komen nachtblindheid en een kleiner wordend gezichtsveld vaak voor. Wanneer klachten beginnen en hoe ze verlopen, verschilt per persoon.

Goede communicatie laat ruimte voor die verschillen.

Bronnen: Oogvereniging en Radboudumc
#RetinitisPigmentosa #LevenMetRP

Vierkante RP Impact Initiative-afbeelding in donkerblauwe huisstijl. Een verlichte route verandert geleidelijk van breed naar smal, als symbool voor veranderend nachtzicht en gezichtsveld. Grote Nederlandse tekst: RP verandert niet voor iedereen op dezelfde manier. Kleine tekst: Ervaringen en verloop verschillen per persoon.
@rpimpactinitiative.bsky.socialSep 9, 2026, 7:54 PM

A study result is more than one headline number. Participant flow, baseline characteristics, outcome measures and adverse events all help explain what the evidence does—and does not—show.

Source: clinicaltrials.gov
#ClinicalResearch #RetinitisPigmentosa

Square RP Impact Initiative graphic in dark blue, violet and turquoise. Several connected panels represent participant flow, baseline information, outcome measures and adverse events. Large English text reads: A result is more than one number. Small text reads: Context helps evidence make sense.