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@restthingever.bsky.socialOct 11, 2026, 3:31 PM

#MECFS #pwME #POTS #LongCovid
How do you handle changes in Atmospheric/Barometric Pressure?
How do you feel them? Do you adjust your pacing strategy on impending ‘drops’?

Graph that shows a drop in atmospheric pressure from about 1023 millibar to 1014 over 36 hours
@tomkindlon.bsky.socialOct 11, 2026, 3:30 PM

4/

SLEEP DYSFUNCTION IN ME/CFS
#mecfs #pwme #cfs

SLEEP DYSFUNCTION IN ME/CFS Sleep dysfunction is a relentless and life-disrupting feature of ME/CFS. It takes many forms and can exacerbate already challenging symptoms, such as fatigue and cognitive dysfunction. ME/CFS research highlights: • Disrupted glymphatic system -brain's waste clearance tool -associated with more severe symptoms, including sleep dysfunction. • Reduced heart rate variability during sleep, indicating inability of autonomic nervous system to de-arouse/recover. • Greater impairment across symptom/functional domains when sleep reversal is present. Although the studies have limitations, they provide a foundation for future research. INFORM. INFLUENCE. INVEST. unrefreshing sleep broken/shallow sleep prolonged sleep/excessive daytime sleepiness altered sleep pattern ken RESEARCH UK SCO36942 Full overview and references at [tinyurl.com/sleepdyssymptomsat]
@tomkindlon.bsky.socialOct 11, 2026, 3:21 PM

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What sleep dysfunction in ME/CFS feels like

#mecfs #cfs #pwme

What sleep dysfunction in ME/CFS feels like insomnia jet lagged torture feeling unrefreshed after sleep cannot sleep easily despite exhaustion fragmented sleep "tired but wired" unpredictable sleep patterns hypersomnia frustrating feeling hungover/drunk amplified symptoms lonely poisoned feeling like a zombie Recurring themes from ME Research UK Symptom Saturday Sleep Dysfunction Survey INFORM. INFLUENCE. INVEST. ) ilel% RESEARCH UK SCO36942
@kimvr.bsky.socialOct 11, 2026, 3:01 PM

Every time you resist negativity & choose gratitude, you rewire your brain to react kinder, calmer, & more loving. #recovered #anxiety #eatingdisorder #NeverGiveUp #AlwaysKeepFighting #fibromyalgia #MECFS #Erythromelalgia

@tomkindlon.bsky.socialOct 11, 2026, 2:49 PM

3/

COGNITIVE DYSFUNCTION "BRAIN FOG" IN ME/CFS

#mecfs #pwme #cfs #brainfog

COGNITIVE DYSFUNCTION "BRAIN FOG" IN ME/CFS Cognitive dysfunction, "brain fog", includes issues with mental processing, verbalising, and memory. This symptom profoundly impacts the lives of individuals with ME/CFS. ME/CFS research highlights: • Impaired communication between different brain areas and disrupted brain waste clearance system. • Links with dysautonomia (autonomic nervous system dysfunction) and orthostatic stress (associated with moving to an upright posture). • Low grade inflammation and impairment of blood flow to brain as contributory factors. Whilst several studies have limitations, such as small cohorts, they lay a foundation for further research. INFORM. INFLUENtrIVEST. Full overview and references at [tinyurl.com/brainfogsymptomsat] 111 iii RESEARCH UK SCO36942
@tomkindlon.bsky.socialOct 11, 2026, 2:32 PM

3/

What cognitive dysfunction (brain fog) in ME/CFS feels like

#mecfs #cfs #pwme #brainfog

What cognitive dysfunction (brain fog) in ME/CFS feels like cannot concentrate mind blank unable to read paused brain losing words mid-sentence knowing what you want to say, but being unable to access the words unable to follow conversation information too fast to process exhausting using wrong words feeling less intelligent difficulty retaining info Recurring themes from ME Research UK Symptom Saturday iSNCognitive Dysfunction Survey REsOV INFORM. INFLUENCE. INVEST. SCO36942
@drdanielloy.bsky.socialOct 11, 2026, 2:14 PM

Eine Kachel behauptet, 44 Mio. € der Forschungsdekade würden Ende 2026 verfallen. Tatsächlich sind die Mittel im Bundeshaushalt ausdrücklich als übertragbar ausgewiesen. Ministerin Bär erklärte bereits am 23.9. im Forschungsausschuss, dass keine Mittel verfallen werden. #MECFS

Screenshot der 29. Sitzung des Forschungsausschusses des Deutschen Bundestages am 23. September 2026. Bundesforschungsministerin Dorothee Bär spricht am Sitzungstisch. Im eingeblendeten Untertitel ist ihre Aussage zu lesen: „Es werden keine Mittel verfallen,“ Gemeint sind die Fördermittel der Nationalen Dekade gegen Postinfektiöse Erkrankungen.
@tomkindlon.bsky.socialOct 11, 2026, 2:14 PM

It has quite often seemed like many proponents of biopsychosocial approaches like GET and graded activity-oriented CBT didn’t want much biomedical research, particularly the type that would challenge their theories e.g. Royal Colleges report on CFS. Not very admirable.
#MEcfs #PwME #CFS

@lassitudor.bsky.socialOct 11, 2026, 2:08 PM

Merkzeichen bei #MECFS – was Betroffenen zustehen kann und woran Anträge scheitern https://www.anwalt.de/rechtstipps/merkzeichen-bei-me-cfs-g-ag-b-h-und-rf-was-betroffenen-zustehen-kann-und-woran-antraege-scheitern-285554.html

@tomkindlon.bsky.socialOct 11, 2026, 2:00 PM

2/
POST-EXERTIONAL MALAISE (PEM) IN ME/CFS

#mecfs #pem #postexertionalmalaise

POST-EXERTIONAL MALAISE (PEM) IN ME/CFS PEM is the delayed worsening of symptoms, such as cognitive dysfunction and fatigue, following minimal physical and/or mental exertion. It often has a profound impact on daily activities. ME/CFS research highlights: • Lower threshold for anaerobic respiration / lactic acid (lactate) production. Elevated lactate at rest associated with more severe PEM. • Sodium-potassium pump dysfunction in skeletal muscle may impair mitochondria and contribute to PEM. • Increased activation of certain brain regions post-exercise may be associated with PEM. Although these studies have limitations, they provide a foundation for future research. PEM is the hallmark feature of ME/CFS • INFORM. INFLUENCE. INVEST. Full overview and references at [tinyurl.com/PEMsymptomsat] 1111111 111141 RESEARCH UK 00030042
@tomkindlon.bsky.socialOct 11, 2026, 1:53 PM

2/
What post-exertional malaise (PEM) in ME/CFS feels like

#mecfs #pem #PostExertionalMalaise

What post-exertional malaise (PEM) in ME/CFS feels like worst flu complete energy drain worst hangover poisoned pain aching sleep making no difference having been run over/hit by a vehicle made of lead nausea weak body shutdown jet lag bone deep exhaustion wading through mud plug pulled out Recurring themes from ME Research UK Symptom Saturday PEM Survey INFORM. INFLUENCE. INVEST. R UK e
@tomkindlon.bsky.socialOct 11, 2026, 1:36 PM

The team at La Trobe University in Australia, including Drs Sarah Annesley & Daniel Missailidis, have published a study acknowledging funding from ME Research UK, which provides evidence of altered lipid metabolism in ME/CFS.

Read more tinyurl.com/yv4mmvtn

#ChronicFatigueSyndrome #MEcfs #CFS #PwME

r 1 Evidence of altered lipid metabolism in ME/CFS J r Researchers at La Trobe University, Australia, I have found further evidence of altered lipid L metabolism in ME/CFS ./ rThe team looked at groups of cells, known as `cel71 lines, that had been replicated from samples taken from 15 people with ME/CFS and 17 healthy controls. •■ L r Results were complex, but overall showed that 1 compared to the cells derived from healthy samples, cells derived from people with ME/CFS L may handle fats and energy differently. rNote: This was a small exploratory study of all female participants 1 meaning more research is needed before firm conclusions can be drawn. OAINFORM. INFLUENCE. INVEST. RESEARCH UK SCO36942 Missailidis D, Armstrong C. & Anderson D. et. al., J Trans Med. 2026;24 (1): 145
@chikocfm.bsky.socialOct 11, 2026, 1:32 PM

“But you look fine.” If you’ve heard this, you’re not imagining it. Looking fine can mean spending energy you’ll pay for tomorrow. You don’t have to prove your pain to be believed.

#Fibromyalgia #MECFS #InvisibleIllness

@tomkindlon.bsky.socialOct 11, 2026, 1:23 PM

ME Research UK:

As part of our Symptom Saturday series over the past 2 months, we’ve been exploring research insights into the core symptoms of ME/CFS. For ease of access & sharing, we’ve collated & summarised the info. Follow link for full overview. tinyurl.com/MEcoresympto...

#MEcfs #CFS #PwME

ME/CFS core symptoms: Research insights ME Research UK Symptom Saturday: Research summary compilation INFORM. INFLUENCE. INVEST. 411% RESEARCH S E0S6942
@unordnung.netOct 11, 2026, 1:13 PM

Rechenzentren verbraten Energie & Abwärme verpufft, während Wohnungen kalt bleiben. Politik fördert Verbrenner & spart ÖPNV kaputt. Wer Zerstörung skaliert, kriegt Milliarden. Wer krank ist, fällt durchs Raster, siehe
#mecfs. Quellen? Guckt hin.
​ #Politik #Kapitalismus #klima #pflege

@tomkindlon.bsky.socialOct 11, 2026, 1:08 PM

🧵
ME Research UK
As part of our Symptom Saturday series over the past 2 months,we’ve been exploring lived experiences relating to core symptoms of ME/CFS.For ease of access & sharing, we’ve collated & summarised the info.Follow link for full overview. tinyurl.com/MEcoresympto...
#mecfs #pwme #cfs
1/

What ME/CFS feels like core symptoms 11, Recurring themes from ME Research UK Symptom Saturday surveys INFORM. INFLUENCE. INVEST. ateN - RESEARCH UK SCO36942
@cgatist.bsky.socialOct 11, 2026, 12:31 PM

Three weeks ago UK Biobank indicated "that re-opening access will start before October." This did not happen. We will get back to you when/if we're told more. @decodemestudy.bsky.social #MEcfs #pwME #UKBiobank @ukbiobank.ac.uk

@europeanmealliance.bsky.socialOct 11, 2026, 12:22 PM

CS Caritas Socialis Hosts the First Specialist Congress on ME/CFS in Vienna
"What can we do now for people with ME/CFS?"
www.europeanmealliance.org/news-Q42026-...
#MECFS #Austria #Wien #CSNordlicht #EuropeanMEAlliance

northern lights, after CS Nordlicht (“northern light”), the Caritas Socialis service for people with ME/CFS featured in this article. It suggests light in the darkness, which fits the message to patients: “We see you and we will not leave you alone.” The coloursare Austrian red, brightening to white at the edges, and a thin red, white and red band along the bottom edge, in the Austrian flag’s proportions.
@melmecfs.bsky.socialOct 11, 2026, 12:02 PM

Kupferschmitt äußert sich auf Instagram.

www.instagram.com/p/DeTukdAo5D...

#MECFS #LongCovid #PostVac

@camillebuckner.bsky.socialOct 11, 2026, 11:43 AM

More of this, please.

#MedSky #MECFS

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