@dystoniafoundation.bsky.socialTruncal dystonia affects the muscles of the torso. It can cause twisting, arching or abnormal postures of the trunk, which may make sitting, standing or walking difficult. There are treatments and strategies that can help.
September is Dystonia Awareness Month.
@dystoniafoundation.bsky.socialThank you to all of our sponsors who helped make Long Island's Dystonia Zoo Day a success!
#dystonia #dmrf #dystoniafoundation
@dystoniafoundation.bsky.socialJoin us in Rochester, NY on Oct. 3 for Rochester's Dystonia Zoo Day.
Be sure to register by the Sept. 16 t-shirt deadline so you can proudly show others that you are a member of DMRF Zoo Crew!
Register today at https://bit.ly/47ENgbv
@dystoniafoundation.bsky.socialYou deserve a day that's all about YOU.
On Wed, Sept. 30 at 6p CT | 7p ET, take time to recharge, learn and connect with others who understand life with dystonia at DMRF’s Virtual YOU Day.
Learn more and reserve your free spot today: https://bit.ly/3RNQqEx
#dystonia #dmrf #dystoniafoundation
@dystoniafoundation.bsky.socialJoin us for Boston Dystonia Zoo Day on Oct. 4.
Zoo Day is a way to come together and remind each other that no one has to face dystonia alone.
Register by the Sept. 16 t-shirt deadline to be a member of DMRF Zoo Crew!
Register today: https://bit.ly/48slhd0
@dystoniafoundation.bsky.socialOromandibular dystonia causes involuntary muscle contractions in the jaw, tongue and lower face which affects speaking, chewing and swallowing.
Learn more about dystonia and help raise awareness during our Ask Me About Dystonia campaign in Sept.
@dystoniafoundation.bsky.socialPittsburgh Dystonia Zoo Day is almost here!
Join us at the Pittsburgh Zoo on Sept. 13 for a day of connection, encouragement, and community.
Check-in and registration begin at 9 am, with the program starting at 10 am.
@dystoniafoundation.bsky.socialLong Island Dystonia Zoo Day is almost here!
Join us at Suffolk County Farm on Sept. 12 for a day of connection, encouragement, and community.
Check-in and registration begin at 9:30 am, with the program starting at 10:30 am.
@dystoniafoundation.bsky.socialDid You Know?
Dopa-responsive dystonia (DRD), aka Segawa’s disease or DYT5 dystonia, often responds well to levodopa, a synthetic dopamine.
Help us increase awareness and understanding of dystonia this September by Liking and Sharing this post.
@dystoniafoundation.bsky.socialJoin the DMRF on Sept. 9 for a webinar about deep brain stimulation (DBS) for dystonia.
Speakers:
🔹Neepa Patel, MD, Rush University, Chicago
🔹Liz Rawson, DMRF Board member and DBS patient
Wed. Sept. 9
6:00p CT | 7:00p ET
Register today: https://bit.ly/4vZROBK
#dystonia #dmrf #dystoniafoundation
@dystoniafoundation.bsky.socialConnecticut's Dystonia Zoo Day will take place in Hanson Cabin at the Beardsley Zoo in Bridgeport on Nov. 1!
This is a chance to connect, share and build community. Enjoy a fun day at the zoo with people who understand.
Register today: https://bit.ly/3qDcN1W
@dystoniafoundation.bsky.socialBlepharospasm is a type of focal dystonia that causes involuntary contractions of the eyelid and brow muscles.
Help spread awareness of dystonia this September by liking and sharing this post and invite your social network to Ask Me About Dystonia.