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@cfscounselling.bsky.socialOct 14, 2026, 8:36 PM

Not sure where to start with building good habits? #CFS has the blueprints! Every week, CFS opens its #WalkInWednesdays counselling clinic in Barrie with no-cost professional counselling. Are you #ready2talk? #HopeLivesHere

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@tomkindlon.bsky.socialOct 14, 2026, 12:25 AM

Recording of & notes for MassME: Sunday Conversations – September 2026 “Insights & Inspiration from Support Group Leaders”

Screenshot from @massmecfs.bsky.social Oct newsletter

youtu.be/1H8chnKirvw

massmecfs.org/events/sunda...

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Recording Available for September Sunday Conversations Massachusetts ME/CFS & FM Association Sunday Conversations Sunday, September 20, 2026 4:00-5:00pm ET REC Insights and Inspiration from Support Group Leaders The Power of Shared Experience WATCH NOW MassME Click Here for Meeting Resources and Links
@trishaelliott.bsky.socialOct 13, 2026, 11:24 AM

A patient’s perspective in the @bmj.com.

Being told that your tests are all normal isn’t always the reassuring message that the doctor hoped it would be.

Please listen to people! Their experiences are valid even if the tests are negative.

Link:
www.bmj.com/content/395/...

#MedSky
#CFS
#Fatigue

Article on fatigue. Picture of person climbing stairs dragging a rope. Text starts: What are the next steps for my severe fatigue? By acknowledging the impact of unexplained symptoms, healthcare professionals can support patients to move forward, writes Beibei Wang
@2covet.bsky.socialOct 13, 2026, 10:16 AM

While it's good to have this evidence, it would be even better if GPs and Specialists took note and parked their gender bias in some old out of the way garage then threw away they key. #CFS/ME/LongCOVID #Arthristis #ImmuneDiseases #Thyroid #Lupus #ParaThyroid

www.theguardian.com/society/2026...

@danielglenn.bsky.socialOct 12, 2026, 11:52 PM

🚨 Send in your sessions! #Knoxville Microsoft Community Day will be amazing: https://sessionize.com/2027-knoxville-microsoft-community-day/
——
#cfs #cfp #microsoft365 #powerplatform #data #azure

@tomkindlon.bsky.socialOct 12, 2026, 2:13 PM

5/

First review I’ve seen

#MEcfs #PwME #CFS

Engaging, fast-paced, and eye-opening crime thriller! Reviewed in the United Kingdom on 8 October 2026 Format: Paperback One of the crimes is so astonishingly devious that it's shocking. Dr Amolak Bansal’s profound clinical understanding of disability and medical gaslighting speaks powerfully through the protagonist, Ben. It's an inspiring novel that beautifully balances intriguing crime-solving with much-needed ME/CFS representation.
@cfscounselling.bsky.socialOct 12, 2026, 2:01 PM

This #Thanksgiving, #CFS is thankful for the amazing community we have the privilege to serve! What are you feeling grateful for this year? Share with us down below #HopeLivesHere

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@cfscounselling.bsky.socialOct 12, 2026, 12:00 PM

All #CFS offices and services are closed today for the #Thanksgiving long weekend, but our booking portal is always open at https://cfssc.ca. Regular hours and services will resume tomorrow. #HopeLivesHere

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@tomkindlon.bsky.socialOct 12, 2026, 12:16 AM

Springer Nature Removes Description of "Fatigue" Patients as "Combative" and "Reproachful" - UPDATED by David Tuller

virology.ws/2026/10/10/t...

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Trial by Error by David Tuller Springer Nature Removes Description of "Fatigue" Patients as "Combative" and "Reproachful" - UPDATED A German paper on chronic fatigue syndrome published by Springer Nature contained derogative language about patients. This resulted into a joint statement with objection from many healthcare providers and scientists. It later turned out the characterisations had been added by a psychiatrist who was responsible editor of the project the paper was part of. Article l Thread
@tomkindlon.bsky.socialOct 12, 2026, 12:08 AM

Solve ME: Applications Open for 2026 Ramsay Research Grants

solvecfs.org/2026-ramsay-...

Screenshot from latest Science for ME weekly update

#MEcfs #LongCovid #PwME #CFS #MyalgicEncephalomyelitis @solveme.bsky.social

Solve ME Applications Open for 2026 Ramsay Research Grants The Ramsay Research Grant program "supports innovative, early-stage research aimed at advancing the biological understanding of infection-associated chronic conditions and illnesses (IACCIs), with a particular focus on ME/CFS and Long Covid." Applications accepted through Friday, Nov. 13. Article | Thread
@tomkindlon.bsky.socialOct 11, 2026, 10:31 PM

5/
Comment from my FB page:

“I’ve just managed to read this paper. It’s fantastic and great to see this important community work summarised and celebrated/memorialised in this way, as well as making strong points about scientific failings in medicine more widely.”

#MEcfs #PwME #CFS

@tomkindlon.bsky.socialOct 11, 2026, 10:05 PM

‪2/‬

‪"Educational disruption was particularly marked. Almost two-thirds of participants received homebound or homeschool instruction, nearly 90% missed school because of illness, and most reported limitations in educational, social, and recreational activities."‬

‪#MEcfs #CFS‬ #PwME #YPwME #YPwC

@tomkindlon.bsky.socialOct 11, 2026, 3:30 PM

4/

SLEEP DYSFUNCTION IN ME/CFS
#mecfs #pwme #cfs

SLEEP DYSFUNCTION IN ME/CFS Sleep dysfunction is a relentless and life-disrupting feature of ME/CFS. It takes many forms and can exacerbate already challenging symptoms, such as fatigue and cognitive dysfunction. ME/CFS research highlights: • Disrupted glymphatic system -brain's waste clearance tool -associated with more severe symptoms, including sleep dysfunction. • Reduced heart rate variability during sleep, indicating inability of autonomic nervous system to de-arouse/recover. • Greater impairment across symptom/functional domains when sleep reversal is present. Although the studies have limitations, they provide a foundation for future research. INFORM. INFLUENCE. INVEST. unrefreshing sleep broken/shallow sleep prolonged sleep/excessive daytime sleepiness altered sleep pattern ken RESEARCH UK SCO36942 Full overview and references at [tinyurl.com/sleepdyssymptomsat]
@tomkindlon.bsky.socialOct 11, 2026, 3:21 PM

4/

What sleep dysfunction in ME/CFS feels like

#mecfs #cfs #pwme

What sleep dysfunction in ME/CFS feels like insomnia jet lagged torture feeling unrefreshed after sleep cannot sleep easily despite exhaustion fragmented sleep "tired but wired" unpredictable sleep patterns hypersomnia frustrating feeling hungover/drunk amplified symptoms lonely poisoned feeling like a zombie Recurring themes from ME Research UK Symptom Saturday Sleep Dysfunction Survey INFORM. INFLUENCE. INVEST. ) ilel% RESEARCH UK SCO36942
@tomkindlon.bsky.socialOct 11, 2026, 2:49 PM

3/

COGNITIVE DYSFUNCTION "BRAIN FOG" IN ME/CFS

#mecfs #pwme #cfs #brainfog

COGNITIVE DYSFUNCTION "BRAIN FOG" IN ME/CFS Cognitive dysfunction, "brain fog", includes issues with mental processing, verbalising, and memory. This symptom profoundly impacts the lives of individuals with ME/CFS. ME/CFS research highlights: • Impaired communication between different brain areas and disrupted brain waste clearance system. • Links with dysautonomia (autonomic nervous system dysfunction) and orthostatic stress (associated with moving to an upright posture). • Low grade inflammation and impairment of blood flow to brain as contributory factors. Whilst several studies have limitations, such as small cohorts, they lay a foundation for further research. INFORM. INFLUENtrIVEST. Full overview and references at [tinyurl.com/brainfogsymptomsat] 111 iii RESEARCH UK SCO36942
@tomkindlon.bsky.socialOct 11, 2026, 2:32 PM

3/

What cognitive dysfunction (brain fog) in ME/CFS feels like

#mecfs #cfs #pwme #brainfog

What cognitive dysfunction (brain fog) in ME/CFS feels like cannot concentrate mind blank unable to read paused brain losing words mid-sentence knowing what you want to say, but being unable to access the words unable to follow conversation information too fast to process exhausting using wrong words feeling less intelligent difficulty retaining info Recurring themes from ME Research UK Symptom Saturday iSNCognitive Dysfunction Survey REsOV INFORM. INFLUENCE. INVEST. SCO36942
@tomkindlon.bsky.socialOct 11, 2026, 2:14 PM

It has quite often seemed like many proponents of biopsychosocial approaches like GET and graded activity-oriented CBT didn’t want much biomedical research, particularly the type that would challenge their theories e.g. Royal Colleges report on CFS. Not very admirable.
#MEcfs #PwME #CFS

@tomkindlon.bsky.socialOct 11, 2026, 1:36 PM

The team at La Trobe University in Australia, including Drs Sarah Annesley & Daniel Missailidis, have published a study acknowledging funding from ME Research UK, which provides evidence of altered lipid metabolism in ME/CFS.

Read more tinyurl.com/yv4mmvtn

#ChronicFatigueSyndrome #MEcfs #CFS #PwME

r 1 Evidence of altered lipid metabolism in ME/CFS J r Researchers at La Trobe University, Australia, I have found further evidence of altered lipid L metabolism in ME/CFS ./ rThe team looked at groups of cells, known as `cel71 lines, that had been replicated from samples taken from 15 people with ME/CFS and 17 healthy controls. •■ L r Results were complex, but overall showed that 1 compared to the cells derived from healthy samples, cells derived from people with ME/CFS L may handle fats and energy differently. rNote: This was a small exploratory study of all female participants 1 meaning more research is needed before firm conclusions can be drawn. OAINFORM. INFLUENCE. INVEST. RESEARCH UK SCO36942 Missailidis D, Armstrong C. & Anderson D. et. al., J Trans Med. 2026;24 (1): 145
@tomkindlon.bsky.socialOct 11, 2026, 1:23 PM

ME Research UK:

As part of our Symptom Saturday series over the past 2 months, we’ve been exploring research insights into the core symptoms of ME/CFS. For ease of access & sharing, we’ve collated & summarised the info. Follow link for full overview. tinyurl.com/MEcoresympto...

#MEcfs #CFS #PwME

ME/CFS core symptoms: Research insights ME Research UK Symptom Saturday: Research summary compilation INFORM. INFLUENCE. INVEST. 411% RESEARCH S E0S6942
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