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@alemmatthees.bsky.socialOct 10, 2026, 8:30 AM

(1/3) If the testimonials of a few curious doctors about the seriousness of #MECFS in the late 1980s early 1990s were not enough to gain support from the NIH / CDC, the publication of Komaroff et al 1996 (PMID: 8873490) on disability and Jason et al 1999 (PMID: 10527290) on prevalence should have.

@restthingever.bsky.socialOct 10, 2026, 7:12 AM

Unser täglich Brot gib uns heute 😆
Frühstück als sog. „mild” #MECFS Betroffener…

Brauch ich das alles — bzw immer noch? 🤷‍♂️
Es geht besser als vor ein paar Jahren, Medis (antivirals, etc) haben def dazu beigetragen.
„Weglassen und beobachten“ ist nicht so einfach— zu viele Faktoren, Langzeitwirkung

About 15 pills lying on the palm of a hand
@abrokenbattery.bsky.socialOct 10, 2026, 6:33 AM

Thoughtful comment from a UK medical student on The #MECFS Scandal.

I’m a current medical student in the UK who as of yet knows very little about ME, but has of course seen it come up in a lot of online discourse. I’m also coincidentally very interested in pursuing either psychiatry or neurology (or a mix of both), and academia. I also have a background in neuroscience. All of that to say, it’s upsetting to hear that bad research has very rightly led to a breakdown in trust between patients with ME and doctors, has in many cases made things worse and has caused untold damage to people’s lives. The worst part is being unfairly dismissed. I cannot begin to imagine how frustrated and hopeless that must make patients that feel. I’m sorry. I’ll do my part to learn more about the condition. Poor research has made things worse, but hopefully one day more rigorous research can find some treatments for ME. That’s the least patients deserve (as well as being heard).
@neurostingl.bsky.socialOct 10, 2026, 5:12 AM

- Zell am See: überlaufen

- Oberwart: überlaufen

- Graz, Wien: ich trau mich wetten

Und trotzdem brauch ich leider keine Angst haben, dass mir die Arbeit ausgeht.

Das ist halt diese seltene #MECFS.

@ifff.bsky.socialOct 10, 2026, 4:56 AM

www.bernerzeitung.ch/sofia-goggia...

Egal was die Verfechterinnen des Immunsystemtrainings propagieren: Viren beenden Karrieren, verändern Leben und zerstören Träume.
Im Fall von Sofia Goggia bekommen wir es mit, bei vielen anderen nicht.
#MECFS

S.Gogia sitz im weissen Polo, Brille eingesteckt auf weissem Stuhl
@chronicloaf.bsky.socialOct 10, 2026, 4:43 AM

The horror movie "Bitch Ass" just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#Criptober #Mutation #horrornoire #spookyseason #FilmFriday #disability #autism #insomnia #mecfs

Bitch Ass movie poster "who's the bitch ass now?"
@chronicloaf.bsky.socialOct 10, 2026, 4:22 AM

#Umma is playing now in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#Criptober #Mutation #spookyseason #scarymovies #FilmFriday #disability #longcovid #autism #insomnia #mecfs

Umma movie poster
@tomkindlon.bsky.socialOct 10, 2026, 2:09 AM

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed

www.theguardian.com/commentisfre...

Screenshot from AMMES October 2026 newsletter

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Photo of someone looking pensive with the following text Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed I’ve spent my working life covering neglected issues. But few are neglected like the devastating chronic condition ME/CFS (myalgic encephalomyelitis, or chronic fatigue syndrome). In severe cases, the illness shuts down people’s lives almost entirely, causing an extreme loss of energy and a wide range of physical and cognitive symptoms that can prevent patients from working, socialising and, sometimes, even moving or eating. Yet these people have been more or less airbrushed from our minds. Read more here>>
@mari-19.bsky.socialOct 10, 2026, 1:27 AM

en.wikipedia.org/wiki/Myalgic...
Ouch, pains in my right wrist since yesterday evening. I got up at 1.45 am German time yet due to #MECFS, showered, washed & blow-dried my hair.
BP 107/76, body temp 35,6°C/96,1°F, outside it cooled down to 10,9°C/51,6°F in SW Germany.
#Samschtig #Samstag #Saturday

@ustinoff.eurosky.socialOct 9, 2026, 11:17 PM

Da es bei #MECFS bzw. #PostCovid keine wirksame Behandlung gibt, bekämpft man mit verschiedenen Medikamenten und Nahrungsergänzungsmitteln einige Symptome. Das gibt leichte Linderung. Man findet das nur durch Herumprobieren.

@bigpolarbear.bsky.socialOct 9, 2026, 10:26 PM

今日は花をお届けします😃

筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。

#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge

@minetodo.bsky.socialOct 9, 2026, 9:17 PM

Timely help is so urgently needed! 🙏
As you are able, please give to this new Friends of Cynthia Johnson Fall 2026 GoFundMe.
Thank you for your kindness, compassion and help. 💛
#StandByMEcfs #pwME #StillSickStillFighting since 2009
gofund.me/edb78da50 #MEcfs

@drdanielloy.bsky.socialOct 9, 2026, 8:00 PM

Per Erratum teilte @springer.springernature.com mit, dass in einem Handbuch Aussagen über #MECFS stehen, die nicht von den Autoren stammen und deren therapeutischer Haltung widersprechen. Heute wurde eine unveränderte Druckfassung ausgeliefert. Wann greift der Verlag ein?
@springernature.com

@anilvanderzee.bsky.socialOct 9, 2026, 7:51 PM

"Twenty years after the start of the largest Q fever epidemic in history, Health Minister Hermans offers apologies on behalf of the cabinet. Tens of thousands of people in North Brabant were infected by nearby goat farms."

youtube.com/shorts/90Xro...

#QVS #QFS #PWME #MECFS #PAIS

@thorsten-runge.bsky.socialOct 9, 2026, 7:38 PM

...COPD, #MECFS, #MCAS und #NON24 ins Gesicht:

Schmerzen, Atemnot, Gaslighting, Firma verloren, 2 gewonnene Prozesse 🏅 vor dem Sozialgericht ohne Anwalt …u.a. Schmankerl...

Das Motto für heute:

Nicht verzagen – und den Sch. mit Würde tragen.

3/3 ⏯️

@investinmeresearch.bsky.socialOct 9, 2026, 5:38 PM

A novel "Ascent of Crime" where the main character has #mecfs written by Dr Amolak Bansal, well known by many people with ME.
www.amazon.co.uk/Ascent-Crime...