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@lupus.orgSep 22, 2026, 2:02 PM

Managing #lupus takes more than one strategy, and this #SelfCareAwarenessMonth, SELF is here to help. Our free app helps you manage symptoms, stress, medications, and your relationship with your health care team.

Download the SELF app today: buff.ly/SZuYnxx

@lupusuk.bsky.socialSep 22, 2026, 12:30 PM

Are you living with #lupus or an associated condition, or supporting a loved one in the South West Region of England?

Come along to the Lupus UK Devon & Cornwall Online Community Virtual Meet, taking place tomorrow (23rd September) from 12pm-1pm. 🗓️

📧 Sign up by contacting [email protected]

@lupus.orgSep 21, 2026, 5:02 PM

New research found that people with #lupus had a higher risk of stroke, including increased risks of both ischemic and hemorrhagic stroke, reinforcing the importance of cardiovascular health in lupus care.

Read the study: buff.ly/HYGbJug

@staceychillemi.bsky.socialSep 21, 2026, 10:00 AM

📣 New Podcast! "Autoimmune Disease Starts in Your Brain, Not Your Immune System" on @Spreaker #autoimmune #cortisol #cytokines #diagnosis #fatigue #fibromyalgia #gut #hashimoto #healing #hormones #hypothalamus #immunity #inflammation #lupus #sleep #stress #thymus #vagus #wellness #women

@resobordeaux.bsky.socialSep 21, 2026, 9:34 AM

🔎 Vivre avec une maladie rare, c’est aussi faire face à de nombreuses questions.

🗓 RESO Bordeaux organise une matinée d’information dédiée aux patients le lundi 16 novembre 2026, de 9h30 à 12h00!

Toutes les infos ici 👉 : www.reso-bordeaux.fr/matinee-dinf...

#MaladiesRares #autoimmune #lupus

@mari-19.bsky.socialSep 21, 2026, 1:35 AM

bsky.app/profile/mari...
I´d been flare-free from the #Lupus for 10+ years, so it wouldn´t be a surprise if I had a flare again now, but I really don´t know. I´d have to get my blood checked for the ANA value, but I wouldn´t get an appointment right now.
BP 107/78, body temp 35,8°C/96,4°F.
💖💖💖

@gelliottservices.bsky.socialSep 20, 2026, 8:00 PM

#selfcaresunday 🫶🏿✌🏾 #outdoor South London: St Peter's Church: Refectory Garden (Walworth) #autumn #active www.gelliottservices.com Lupusfit™️ #freelance #mind #body #yoga #fitness #health #wellbeing #muscles #heart #exercise #goals #Motivation General & #Lupus #raynauds #CKD #advocate #awareness

@illuviel.northsky.socialSep 20, 2026, 3:59 PM

I looked up Christine Miserandino, the #Spoonie coiner of #SpoonTheory, in order to catch up with her career and condition, & noticed her last posts on FB & Insta are from 2024. Does anyone know how she's doing? She has systemic #lupus & I have concerns about this #ChronicIllness advocate. #bydls

@starrytimepod.universeodon.com.ap.brid.gySep 20, 2026, 1:25 PM

My #favorite pick for #PopCulture appearance of #Lupus on this week's episode (listen here: https://starrytimepodcast.podbean.com/e/lupus-pop-culture-superstar/) was: "Canis LUPUS familiaris" -- THE DOMESTICATED DOG!

Gimme all your adorable #dog pictures!! […]

[Original post on universeodon.com]

Photo of a black-and-white husky with blue eyes, resting its head and paws on a cream sofa arm.
@lupus.orgSep 20, 2026, 1:02 PM

💜 Watch as Janeris shares what it's really like to live with #lupus, an autoimmune disease where the immune system mistakenly attacks healthy tissue, causing pain, fatigue, and brain fog that most people never have to think about.

Learn about lupus: buff.ly/DOWj0Nt

@mari-19.bsky.socialSep 20, 2026, 3:22 AM

7 Ways To Lose Weight Without Exercise, from a Doctor of Obesity Medicine.
Due to #SLE I´m chronic underweight, lowest BMI was 12 in autumn of 2000, 2 years before the #Lupus was diagnosed & treated with cortisone.
www.thehealthy.com/weight-loss/...
@lupus.org @lupusuk.bsky.social

@reenadevee.bsky.socialSep 20, 2026, 3:06 AM

10 Eye-Opening Ways Lupus Affects Your Body

#Lupus

https://justpaste.in/blogs/ways-lupus-affects-your-body/

@gelliottservices.bsky.socialSep 19, 2026, 8:29 PM

#weekend ready🙏🏾✌🏾London #outdoor Burgess #park #autumn #active www.gelliottservices.com Lupusfit™️ #freelance #mind #body #yoga #fitness #health #wellbeing #muscle #tone #strength #stretch #heart #exercise #goals maintenence consistency #Motivation General & #Lupus #raynauds #CKD #advocate #awareness

@starrytimepod.universeodon.com.ap.brid.gySep 19, 2026, 5:24 PM

New episode out now!

This week we're getting silly & chaotic to talk through our favorite and least favorite #PopCulture appearances of #Lupus (the #constellation).

Listen here: https://starrytimepodcast.podbean.com/e/lupus-pop-culture-superstar/

#podcast #Humor

@lupus.orgSep 19, 2026, 4:01 PM

Looking for a place to connect with others who understand life with #lupus? 💜 LupusConnect is a free online community for people with lupus and their loved ones to share experiences, find emotional support and discuss practical tips for daily life.

Join today: buff.ly/UwPX66U

@lupus.orgSep 19, 2026, 2:01 PM

🏃 Race to End Lupus at the 2027 Double TCS London Marathon!

Join our inaugural team for this historic two-day event and make your miles matter for people impacted by #lupus.

Apply by October 2: buff.ly/ErJKnwz

@mariaelenazuniga.bsky.socialSep 19, 2026, 5:54 AM

🦋💜Las catástrofes ponen a prueba nuestros cimientos, pero la resiliencia se construye día a día, decisión a decisión.💜🦋

#Lupus #LupusEnEspañol #Resiliencia #Parati #Fe #Amor #EnfermedadCronica #Esperanza #Superacion #SaludYBienestar #Bluesky

youtu.be/opOzrJ3qh-E?...

@lupus.orgSep 18, 2026, 8:01 PM

For three generations, #lupus has been part of Yvette’s family story. This #HispanicHeritageMonth, she shares how family, faith and self-advocacy shaped her 30-year journey. She hopes more Hispanic families will talk openly about health.

Read her story: buff.ly/QhUDMvB

@lupus.orgSep 18, 2026, 8:01 PM

Durante tres generaciones, el #lupus ha formado parte de la historia familiar de Yvette. En este #MesdelaHerenciaHispana, ella comparte cómo la familia, la fe y la defensa de sus propios intereses marcaron su trayectoria de 30 años.

💜 Lee la historia de Yvette: buff.ly/QhUDMvB

@lupus.orgSep 18, 2026, 7:00 PM

💜👟 LFA Charleston Ambassador Shama joined @abcnews4.com to share her #lupus journey ahead of this weekend’s Charleston #WalktoEndLupusNow.

Hear her story and learn more about the Walk: buff.ly/QittYDl

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