drive.google.com/drive/folder...
Sialorrhoea Steering Group resources above
@commchildhealth.bsky.social #bacch
@lordsedge.bsky.social
@lordsedge.bsky.socialdrive.google.com/drive/folder...
Sialorrhoea Steering Group resources above
@commchildhealth.bsky.social #bacch
@lordsedge.bsky.socialThe FEEDS toolkit developed from research into parent-delivered interventions which are evidence-based to improve eating and drinking in children with difficulties
research.ncl.ac.uk/neurodisabil...
@commchildhealth.bsky.social #bacch
@lordsedge.bsky.socialImplementation of research is tricky for multiple reasons.
Lack of evidence, costs, reluctance/capacity to change etc etc
@lordsedge.bsky.socialNEXT UP!
Professor Jeremy Parr: NHS use of the Findings and Materials from Child Health Research: Examples from Neurodisability Research Programmes
He notes: his wife (a medic) hates the title of his talk!
@commchildhealth.bsky.social #bacch
@lordsedge.bsky.socialQ. This was a long and broad question, essentially asking how WCCHN would be affected by multiple national policies, and data from centralised policies and reports.
A. A good, nuanced answer, essentially we will be guided by them but not dictated to by them
#bacch @commchildhealth.bsky.social
@lordsedge.bsky.socialQuestions: What is your relationship with public health?
A: There is lots of overlapping. They are invited to Public Health Wales committees (most recently obesity, healthy living).
Q. Do we have an FASD service in Wales
A. No, unfortunately not yet
@lordsedge.bsky.socialThe original bimonthly educational meetings continue!
The website is in development, and the Network is consolidating its Terms of Reference & committee.
If you're in Wales/Cymru and you're in Community Child Health, get involved!
@commchildhealth.bsky.social #bacch
@lordsedge.bsky.socialThey have conferences for medics!
They have also organised study days for disability Social Workers - at the request of the SW's. It was very successful, and a follow up has been requested by the SW teams.
They are affiliated with #BACCH @commchildhealth.bsky.social since 2024
@lordsedge.bsky.socialBimonthly lunchtime meetings developed into peer discussions and expert talks, but there was an appetite to develop something more substantive
They began All Wales guidance workplans for EDI, Down Syndrome and on to many more.
It's really started to gather pace
@commchildhealth.bsky.social #bacch
@lordsedge.bsky.socialWales has specific health challenges.
There is a population of 3 million, spread unevenly, with large rural areas of low density population.
Tertiary services for those in the north may be located in England.
The Wales Community Child Health Network exists to balance some of the issues
@lordsedge.bsky.socialFirst up: Dr Lizzy Nickerson: Croeso i Gymru! An All-Wales Approach to Community Paediatrics
#bacch
@commchildhealth.bsky.social
@dsmig.bsky.socialLooking forward to the DSMIG workshop at the #BACCH Annual Scientific meeting in wonderful Cardiff next week! 🏴
@commchildhealth.bsky.social
@dsa-uk.bsky.social